Your frustration in dealing with this condition sounds familiar. I struggled for years and years, was diagnosed almost 3 years into it. By then it was too late, it had spread from both knees to both legs and was chronic. I have this monster since 1995 (at the age of 23), so more than 14 years. Since 2008 it spread to both arms for which I am still undergoing treatment (calcitonin). Treatment is a little different in this country. They start with calcitonin, then they try bisphosphonates, this together with pain medication (such as anti convulsants). If that doesn't help or help deal with the pain, then they try the more invasive stuff (blocks, SCS,...)

I hope you get the care you need asap.
Don't stop fighting until you do!