Erin,

I'm so happy that you were able to get so much help at the Mayo! As I said in an earlier post to you, my impression of the minn mayo was that it was the best run organization I had ever witnessed. Truly a marvel of human ingenuity and organization.

Did you have a particular doctor that you asked for? Or did you just ask to be seen by an mg specialist? I ask because I'd like to go back there, but the first neuro I had was pretty clueless about mg and blew off my positive antibody test.

I can't believe your neuro sent you flowers!!!!! What an incredible person. I think that says so much. I'm so happy that she'll take care of you and that you can get lots of IVIG treatments. I guess you're going to need it without all the pred. Wouldn't it be great if she could control the disease without the pred and you wouldn't have any of the horrific side effects? I mean on some level it's got to be nice to wave goodbye to the pred just for the weight gain issues alone. Even though I want stronger treatment for mg, everytime I read about the moon face and the weight gain and the weak bones I really have to wonder what I'm trying to get myself into.

Anyway, it's so nice to hear that you've been well taken care off and thoroughly researched. I love to hear that because it goes a little way toward restoring my faith in the medical field. Plus, I'm so happy and relieved that you're being helped.

You've managed to keep your head above the water and keep going even though these last months have been torture. Literally! Good for you, you are a real inspiration to me.


Ally