Member
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Join Date: Nov 2009
Posts: 180
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Member
Join Date: Nov 2009
Posts: 180
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Hi Sukadog, I understand how you feel. I started with RSD in left arm and blocks didnt work great so I did the trial SCS and it worked too well-I was unusual, and was getting sensation in my whole body. I thought it was great for my pain but was reluctant because I was very active and afraid of RSD spreading. So I stuck with meds and therapy. Within 6 months my RSD is now considered General CRPS because it has spread to all 4 extremities. My treatment recommendation now is Ketamine coma. I wont do that yet. But I do regret not getting the SCS. I have researched that SCS may work but when they stop working they can cause RSD to spread because your body rejects it. I think I should have gotten it and when it stops working I should have just removed it. As for being worried about not being able to run or stretch, like i thought, well now I have trouble just walking so I am in worse condition. It is difficult to make decisions when you have RSD because you hear 2 sides to all treatments. Who knows maybe my RSD would have spread even with the SCS (then I would thought it was because of getting it). I guess we all have to do reseach and make choices we are comfortable with. Best of Luck with your decision. Keep warm. momof4
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