Hi and welcome to Neuro Talk,

I am sorry your son is going through this, it must be very hard on you all.

I can't help with any of your questions, but if you follow the link in the above post, there will be people who know alot more about this than I do, and will be able to help you out.
Everyone here is very helpful and caring,
I hope all goes well with the surgeon on Thursday,
take care
Kate