Quote:
Originally Posted by gabbycakes
Hi All,
I am from the RSD family but I am posting here today because my 15 daughter was diagnosed today with Chiari Malformation. We are at the beginning of this journey.
She will be seeing a Peds. neuro. doctor who specializes in all headache and spine issues at NY Pres. Cornell on the 24th, I am also going to try and get her into the The Chirari Institute in Great Neck, Long Island, NY, they are suppose to be the best. .
I would greatly appreciate any input, suggestions, good or bad.
If anyone has info. on any doctors again good or bad please inform me. I want my daughter to get the best possible care.
My daughter is a great child and it is killing myself and my husband that she has to go through this so please any input at all would help.
Thank you,
Gabbycakes
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Gabby,
I can assure you from my research that the doctors at GreatNeck are the best in the country. Yes, do your homework. Also, before surgery if possible check into natural alternatives as there is research being done. I was diagnosed in 2006 and did have surgery by Dr. Barth Green -also one of the best- however the doctors that youare talking with specialize in continued followup. it is WHAT they do. Relax. What doctor are you consulting withat this point?
~WyndyHopes~