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Originally Posted by cseegersdc
What you are describing IS weakness of your upper core (head/neck stabilizers) You need to consult with a Chiari specialist at Mayo, where they have excellent and informed neurophysiotherapy and learn more so that your P.T. can have the ability to help you with in safe parameters. You need to be able to strengthen your whole core to be able to stabilize the weight of your head. This can be done with several exercises performed in "neutral spine" position. Look for a P.T. who has extensive Pilates rehabilitation training. You will get stronger! Your Neuro doc is a just that, they tend not to look outside the box, and the P.T, not knowing enough about your condition, is probably overly cautious and staying within the Neuro docs limited box!
Good Luck!
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Most NeuroSurgeons are just that - surgeons. Although I had one of the best Barth Green, in April 06 . He patted me on the behind and sent me on my merry way, to recover alone w/o support. They tend to see their job as one-stop-shopping. There are others that specialize in Chiari and recovery and follow you through. Then again, not all who say they are NeuroSurgeons should be doing brain surgery. ~WyndyBelieves~