Kate- thanks for your support. I do have a sinus infection, again, never really got rid of it while using the horrible clarithromayacin (sp) yet now I have a new antibiotic augementon or something. That supposedely is okay to take with MG. So hopefully that will get rid of it.

I think/hope thats why my days are so bad right now, I want to be able to go skiing, more than anything!

I realize everything takes time, but i hate that about it, its so hard to be able to cope with the time factor, even in normal life circumstances. Yet im doing it..
Thanks again kate. Your a great help. And dont worry about not having answers, its quite fine.

JOAN- i have asked my doctor to taper me off my pred, for its not doing ANYTHING. While I had my crisis a week back, he said he wanted me to stay on it, for now, and in 2 weeks i could start tapering off it. -Though to some degree I am on the same page with you..
Maybe the specialist at Duke will have more answers.

Brennen- I tried mestinon, yet it didnt do a thing for me. I went from the highest dose possible, to the lowest dose and didnt see any improvement, so i was told to stop trying.
Im not sure im on the same page with how fast your saying pred. works. It shouldnt take up to a year, from my studies. It should only take up to a month or 2 at max to show some kind of improvement, and it hasnt yet.
Theres nothing else for me to take, for a day to day basis, its all long term right now, hopefully waiting for the thymectomy to kick in.

Thanks for your concern.

Kendra- Thanks so much for your words, they mean alot. Yet Im not sure, maybe i just seem alot stronger on the website, or maybe i truly am what you guys think i am Strong. I just read your post about the Hemo, yet I havent seen alot of your posts, so im unsure of what agrylin is...But i hope things go well, and that you test neg. Though if you do test positive, im glad your hemo is going to treat it as aggressively as he can. You deserve it.



Hope you all are doing well.