[QUOTE=Conductor71;617238]Hi,

Keep in mind there are other rare things that half-heartedly respond to levodopa.


What kind of rare things??

My neuro says she doesn't think I have Parkinson's, just some kind of Parkinsonism, but I'm not really sure what that means and she says she needs to do more research. I had an aunt that died of Progressive Supranuclear Palsy. I sure don't want that one!

My new neuro is a Movement Specialist, I was referred to her because some of my symptoms (PLS) have changed over the course of 12 years and the dx of PLS is now questionable. Primary Lateral Sclerosis is supposed to be really rare, maybe 500 people in the U.S.
It also has no definitive tests, just upper motor neuron signs like Hoffmans and Babinski as well as hyper reflexes. My reflexes used to be quite brisk, but now are either non-existent or close to it.

Thanks for all the help.
Jen