hi,

i'm in the uk. having a big flare-up at the moment, so shouldn't be on here. wondered if anyone had outside help with day-to-day things. finding it impossible to get my daughter ready for school / prepare meals / shop for clothes, etc. have a housekeeper for 2hrs a week (feel useless not being able to do that as well). partner and i are going to relate (not now, coz of flare) so can't put more on him.

don't really know where to turn. feeling so useless as a mum. worried my daughter will be taken into care, coz can't wash her/clothes/feed properly/school at the mo.

i don't yet have tos diagnosis, just axonopathic brachial plexus and spinal accessory lesions, although the symptoms are just so unbelievably what i wrote down about my symptomatology nearly 2 yrs ago. so don't know how to explain the difficulty in using the arms. there i go again, typing too much...