Junior Member
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Join Date: Apr 2009
Location: Ireland
Posts: 18
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Junior Member
Join Date: Apr 2009
Location: Ireland
Posts: 18
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Hi dBrow
What is your update on this?
These problems are not unknown in Marfan Syndrome, Vascular Ehlers Danlos or Loeys-Dietz Syndrome. There are a number of heart surgeons who can, I believe perform these procedures. John Hopkins in Baltimore is a good place.
Hope you are ok
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