Hey cornne89,
I went to see Dr. Li, today at his Renton office for a SNB but the x ray machine broke!! So I have to wait till next week GRRRR
Yes, he is doing injections as well as implants. I don't know much about the implants, they arn't for me for more than one reason.
He is in the Renton office mon. wed. fri. this fri & next mon he isn't working.
He does still have his Seattle office but I'm in the auburn federal way area.
I do hope to get a RSD/CRPS support group start by months end. You can find me through face book & I have an egal head as profile photo & you can tract me through the rsdsa page.
As of right now I am having to use the public library my monitor died. I will be in touch as I can but the library is closed on Sat.
I have no idea what to tell you abotu the scs, I would suggest you talk to as many folks as you can & remember every "BODY" is different & each react in their own way. I hope you can get in touch I will support what ever choice you make. I know that is a hard one!!
HUGZZZ Sam
Quote:
Originally Posted by corinne89
I have seen Dr. Irving (who is the clinical director) at Swedish's pain management group. One has to be referred in order to get an appointment there. He seemed to be caring and confirmed my need for the meds that I was on. Even if I came out of that appointment just having a written confirmation from the "experts" that what my doctor is already doing felt validating. Since the knowledge here in Seattle is so poor, I live in fear that my main doc (who does understand this fairly well) will get hit by a bus by accident one day and I'll be on my own. Dr. Irving was quite knowledgeable about chronic pain, and does have some RSD patients. The thing to note is that the pain clinic will not function as your provider for meds after they figure out a protocol. You are then sent back to your primary doc (with occas. follow-ups with the clinic). Even though my RSD is in 3 limbs, my trunk, neck, side, and back (with a lot of internal issues as well), he was geared towards a SCS for me which scares me to death. I worry when I see the poor rate of long term SCS success for RSD'ers (vs. other chronic pain) as well as the long term commitment of $ involved. Every time something invasive happens with me, the RSD spreads. I just don't think I could handle it if I "made" myself worse, so surgery is out for me.
Corinne89
P.S. Leather, It just dawned on me I have seen Dr. Li. He told me that he was not functioning as a regular neurologist, and his scope of practice was limited to implanting and maintaining hardware (SCS and pain pumps). Has he changed?
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