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Member
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Join Date: May 2009
Location: Eastern TN
Posts: 314
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Member
Join Date: May 2009
Location: Eastern TN
Posts: 314
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2 days every 3 weeks
I am doing 2 days every 3 weeks right now, but I have had it every 2 weeks, every 4 weeks, it all just depends on how the mg is doing over time. I have been on IVIG off and on for about 5 years and it has been a lifesaver.
I really try to pay attention to how I am reacting each time I get the IVIG because it is so darn expensive and I don't want to be getting unnecessary treatments. My insurance company has been really good about approving the IVIG, but I just shudder each time I see how much they pay.
Having said that, I really believe IVIG is what is keeping me going.
Just FYI, I am also on 3,000 Cellcept daily, 60 mg mestinon every 4-5 hours and 180 timespan at night and 60 mg prednisone daily. The prednisone is mainly because I have been having bad double vision problems the last 6-8 months and I'm trying to get my vision back in line. I've been on it for about 2-1/2 months and there is some improvement. I'll see the neuro next week and discuss it with him then; hate the side affects!
As everyone who has mg can tell you, everyone is different and you have to figure out what works for you.
Good luck!
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