Quote:
Originally Posted by kim ames
Hi KS!
I feel exactly like you and many of us feel! I live in Maryland and we just got another blizzard yesterday. It's snowed more this winter than in the past ten years combined! Set new record for all-time highest amount of snow...ever! AND, lucky us, another storm coming next Monday!!! AHHHHHHHHH!! (And I LOVE snow!).
I missed my pain doctor's appt., cuz they got hammered too (Philadelphia) and I will run out of pain meds, therefore I will have to resort to my vicoden, which I am allergic to and make me vomit. Gotta pick the lesser of two evils; agonizing pain or puking! (sorry to be so graphic.)
As far as pain goes, for me anyway...Deep burning in my RSD leg, agonizing muscle spasms, shooting pain, bouts of sweating/shivering, one inch of atrophy, extreme burning (like a jellyfish stung me), piercing jabbing jolts of fire. 24 hour a day, 7 days a week. My husband says that I even cry in my sleep.
I am very sorry that you are going through this. BUT, everyone here is very kind and caring and sympathetic (get the joke?). I have made many wonderful friends here and so will you. One friend has not heard from me in a while (bad flare from snow) and PM'd me just to check on me! Now that's friendship!
Oh, and HAPPY BIRTHDAY! and congrats on being a Grandma!
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So nice to hear back from you both..Yes,.. My RSD has never ever stopped or lessened in the 3 years I have had it..Of course, I gotx the SCS unit and now it has spread... Yes, my Blood pressure just today was 134/84.. it does travel as low as 50 on the bottom also.... I too have whole body sweats then turn cold instantly...and I have had 4 out of 5 nerve blocks.. medications..two arms length which I had to stop taking and now I am on nothing cold turkey as I is just too hard to be sick too.. I had accupuncture.. I was told I am too far advanced for the oxygen chamber...(HBOT)and now off to Drexel with a "rush" stamped on my forehead...in March the 15th.. This is only a consult to see Dr. S and what is possible for me...honestly..I am having lots of trouble wrapping my heart around this step..maybe I am getting tired of the whole RSD game..or possibly the travel and $$$ it is going to take, I don't know... Anyway... I say the I am okay..and Iam okay.....I hurt, as everyone does...I just get up and try again each day... Oh and I never cry...some reason..I just can't do it...
Kim, how long have you had your constant symptoms?? Sandy, I am so happy you go in and out of flares....
Much love to you, my special friends!!! And thank you for allowing me to spew!!!
Kathy
