Quote:
Originally Posted by Ripplegirl99
Hello,
When I had my last shunt revision I found out I had aqueductal stenosis. I was not born with hydrocephalus. I got hydro at six months of age due to menengitis. I thought that aqueductal stenosis was usually gotten at birth?
How did I get this disorder and why was it never caught when I was younger?And are there other ways of getting this disorder than at birth?
Ripplegirl99
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Hi Ripplegirl99,
I'm a 50 yo, I was diagnosed with enlarge ventricles and tention headaches 1987. I was hit on the head during combat manevurers in 1980. The actual ediolgy is unknown,however I can trace my headaches back to that incident. I had shunt surgery 12/2006, because of complication during surgery a Subdural Hemotoma developed requiring additional surgeries 4 to be exact. I guess I'm doing well, still on pain meds to control headaches, My short term memory got worse I currently am 100% IU 80% SC P&T and getting SSDI at a 100% rate. I can no longer earn a living. Its good I had paid enough into Social Security and served 18 years in the military. My life has totally changed.
Don't mean to scare anyone, but this is a terrible condition. According to my wife I'm much better, because I use to passout alot, get lost, lost by vision and the headaches were unbarable. I still have bad headaches,severe memory problems, depression, balance problems etc.. I would have the surgery again if I were in the same situation. I'm tried of writing. If someone has specific question to ask me I'll do my best to share my experience with you.
God Bless you