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Old 02-11-2010, 11:58 PM
TEC49 TEC49 is offline
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Join Date: Apr 2009
Location: CA
Posts: 16
15 yr Member
TEC49 TEC49 is offline
Junior Member
 
Join Date: Apr 2009
Location: CA
Posts: 16
15 yr Member
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Quote:
Originally Posted by Sharyn View Post
My partner is 26 years old,

in the past year he has started having severe headaches, pressure in his head and behind his eyes, pain behind his eyes, collapsing when he laughs, constantly tired, sleep paralyisis, blurred and double vision, loss of co-ordination, loss of balance, constant dizzyness, loss of muscle strength, agressiveness and loss of perception to name a few

He had an MRI which shows he has enlarged ventricles and a narrowing of the passage between the third and fourth. He had ICP monitoring, but his intracranial pressure is normal.

The surgeon intern we spoke to said surgery would not help him, as some people have enlarged ventricles its just the way they are - but my partner has only had these symptoms come on in the past year and they are getting worse everyday.



When looking at cases online, the normal protocol for enlarged ventricles is to try and resolve the blockage and narrowing, but he has been told there is nothing surgically he can do??

I dont know if anyone has any experience with neurosurgery who can help me, but any views would be greatly appreciated

We are in the UK so we get our treatment free on the NHS, which means we dont have much choice in regards to second opinions unless we go private- but with him not working now this seems like an unlikely option



Thanks in advance
Hi Sharyn,

I thought I was reading my symtoms as I read your post. I was diagnosed with enlarged ventricles in 1987. It wasn't until 2005 That things went into high gear. I had lost job after job because of my condition. If your partner is having these things happening now you need to get a second opinion. I was almost to late. My vision went out while I was driving on HI 35 in Austin TX at 70 miles per hour I started to see 8 lanes instead of the two going in my direction. God took over and got me off the road. Why am I telling you this? I didn't get any warning, it just happened! If those ventricles are enlarged and your partner is having the symtoms you mention I would get a second opinion right away. If you like I can give you my neurosurgeon's information he's in Texas, but maybe he can put you in contact with someone where you are. At any rate don't wait to long. Share my story with his doctor.

God Bless you both

TEC49
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