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Old 02-12-2010, 09:09 AM
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Heart

Kathy--

Don't EVER GIVE UP!! That's what WC wants me to do - that's why they have tormented me, harassed me, harassed my treating physicians and other providers...Mike's answer was AWESOME - there is an answer for us - in the long run. It just takes time, which is so darned frustrating. We wait FOREVER for phone calls, and approvals, and appts, and treatments, etc. And for me, I am not made of money, so we need the cooperation of the insurance company, which is NOT going to happen easily. EVERYTHING is a battle, nothing falls in our lap, we have to work hard for it. BUT WE CAN'T GIVE UP. If ketamine is not the answer for us, then a pain pump likely may be. We need to ensure that we always have a Plan A and a Plan B. And maybe even a Plan C. You are going to see Dr. S soon - he knows so much, and can guide you to the best of the best. You hang in there...It's almost here.

FMichael - I have said it before, you are awesome!!!... as your were composing your posting I was in the process of trying to wean down off of some of my opiods. The brain fog and depression and crying spells are creating quality of life issues, and I think cutting down on some of my meds will make me better off - your posting was so timely. I just have trouble with the head and neck pain...they tend to get worse on lower levels of meds...but I want to give it at least several days.


Love and Peace, Sandy



Quote:
Originally Posted by keep smilin View Post
As we are all aware... not one treatment or medicine works the same for any of us..so who is to know what affect we'll all get..there now with that said...

We go thru the high and lows of treatment and interventions...SCS, blocks..Ketamine...on and on... I am beginning to feel a bit like the fury fella running on the wheel..anyone else???? I am starting to side with one of our friends who once said..I am done..DONE.. done..with it all..I am an RSD mess and that is the way I will live... one good thing..we won't die from it...thats what they say right???

Guess I am sounding tired..but what I really want to say is..I wish I had a magic wand..cuz if I did ..I would love to make you all here feel better and rid of your RSD....

Momf4... I am so sorry on what you should really do...as it seems we are all hitting the part in the road in which way to turn.. Our Dr.'s still go home at night ... painfree themselves..leaving us lie awake at night wondering what tomorrow has in store for us.. Please let us know how you are doing.. We are your friends....

You, and all of my friends here are in my prayers....

Kathy
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"Thanks for this!" says:
hope4thebest (02-13-2010), RNcrps2 (02-12-2010)