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Old 02-12-2010, 07:25 PM
NancyKay NancyKay is offline
Junior Member
 
Join Date: Feb 2008
Location: Lummi Island, WA
Posts: 41
15 yr Member
NancyKay NancyKay is offline
Junior Member
 
Join Date: Feb 2008
Location: Lummi Island, WA
Posts: 41
15 yr Member
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Quote:
Originally Posted by amy rose View Post
I had plasmapherisis and unfortunately it didn't help. My schedule was 3 times a week, once a month, for three months. I have wondered if that is the schedule for most people. It amounted to 9 treatments in 3 months. My neurologist never recommended IVIg. I have anti mag neuropathy.
Hi Amy Rose,
I also have anti-MAG neuropathy. I was diagnosed 8 years ago while living in Iowa. I was started on IVIG and it worked well for 2-3 years. I am now out in Washington State and seeing a neurologist in Seattle. He is recommending plasma pheresis and cyclophosphamide. I am afraid of long term side effects, so I haven't had any treatment for 2 years. Do you have a good neurologist where you are? Any good treatments for you? I am 54 and finding that my balance and hand coordination are getting worse. Last big fall resulted in a broken foot!
Thanks,
Nancy Kay
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