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Old 02-12-2010, 08:15 PM
Joanmarie63 Joanmarie63 is offline
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Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
Joanmarie63 Joanmarie63 is offline
Member
 
Join Date: Mar 2009
Location: Western North Carolina
Posts: 468
15 yr Member
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Tyson

I am sorry your appointment didn't go well. I would NOT add mestinon to your meds without your Dr knowing. I don't know anything about cellcept other than reading what everyone writes about it, I will never try it.

I only take mestinon and it helps me when I need it, but I still get very weak at times, today I dropped my water cup because my left arm was to weak to hold it, soooo, rest time for me

We have our good days and bad and only YOU know your body and how it is feeling and you will know if you can ski or not. If your Dr. is that worried about your breathing than maybe you should listen to him.

We all know not to push ourselves to hard. I really hope you get to go skiing, as I know it is something you are really looking forward to. PLEASE continue to keep us updated.
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