Joanmarie- Thanks for your support. It was a hard meeting, he was asking me how i was dealing with it all. How do you think im dealing with it mr. neuro? Your telling me if i excersize AT ALL, i could go into complete respritory arrest. Wow cool. Yet im okay with it, im not happy.

I wont try mestinon until I talk to the doctors at Duke on monday, my neuro said they may make me try it again anyway. So hopefully it works.

Is it stupid to just try it one day, to see how i feel? Or half day?
I hope i can skii too, and thanks.


Sue- Im having everything taken away, piece by piece and its killing me. My SAT scores came back today, they were horrible, due to the fact i was starting cellcept, having horrible headaches, chest pains, etc. etc. Whatever. Im just in a horrible mood about it all.

I know its not worth it, but i want to do it SO bad, because everything im trying to do is failing. I know my doctor may be right, but why cant I atleast try it?

I know things arent really in my favor, yet im wishing for something.

I know also ill be able to in future years to come, but right now, i want to be able to skii. Im going with my friend, who is able, and healthy as a horse, and that ****** me off, that i cant even be healthy enough to SKI!

Please dont be sorry, its life i suppose.

Thanks.