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Old 02-13-2010, 07:45 AM
sukadog sukadog is offline
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Join Date: Oct 2009
Location: sw florida
Posts: 63
10 yr Member
sukadog sukadog is offline
Junior Member
 
Join Date: Oct 2009
Location: sw florida
Posts: 63
10 yr Member
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Quote:
Originally Posted by Rrae View Post
I think we've spoke in the past. I'll go back and look thru older posts.
I don't have type 2 RSD per se, but you mentioned 'burning' pain and that's exactly what I battle. constantly
Mine is more of a peripheral neuropathy nerve damage thing in both legs, but one doc did say it resembles RSD.
There never seems to be a clearcut diagnosis on this.

You mention 'blocks' and I'm assuming you are speaking of Sympathetic or Lumbar nerve blocks yes?
I had short-lived relief with the injections. When I did the SCS trial it was very clear to me that it would cover my pain.
The blocks do exactly that - block the pain signals from reaching the brain. The SCS seems to 'cover over' the pain, rather than block the pain. It's sort of like an exchange. You get a soothing tingling sensation in place of the burning.

But don't take my word as gold. Some here with RSD have indicated that the SCS has made their condition spread, even to go bodywide.

At the top of this page there is a link (in the top 'stickie') that will take you directly to the newly formed SCS forum.
It would be great if you also post your question there and as the forum builds posts, you are apt to get more input.
Make sure you click on the link indicated in the 'stickie' post and it'll take you to the forum. If you post your question at the 'stickie', it won't get to the SCS forum and people may not see it.

You bring up a very good question, and I'm anxious to see what input you receive.
Feel free to send me PM and we can talk more details if you want. Has your doctor recommended the SCS in your case?

Rae
Thanks! my rsd is in my arm/hand so i get stellate ganglion blocks stellate ganglion blocks and they help a lot!! My pain management dr is recommending it forlong term relief since the blocks only help for a couple of weeks. I'll post the question as you suggested. Thanks again.
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Rrae (02-13-2010)