View Single Post
Old 02-13-2010, 01:08 PM
Isis's Avatar
Isis Isis is offline
Member
 
Join Date: Aug 2006
Posts: 316
15 yr Member
Isis Isis is offline
Member
Isis's Avatar
 
Join Date: Aug 2006
Posts: 316
15 yr Member
Default

Thanks Laura, I read your posts with much interest. You have quite an ability to assimilate and then express that information - I find that admirable. I have gained a lot of perspective from what you write.

I am also worried about this 'layering'.

In the middle of December it was Comtan - started with 100 mg and a week later was increased to 200 mg. The resulting tremor was just too awful, and since the doctor was not contactable we discontinued cold-turkey. He was fine from next morning.

From the 31st of December we started DXM. Within about a week even a friend of his who is a doctor commented on how there was virtually no tremor or dyskinesia. His sleep improved. His face got some colour back and was more mobile. This of course I got him to start after reading about it on this forum and then elsewhere on the web.

Then the doctor prescribed Amantadine. I actually believe that the improvement he experienced with the DXM slowed down. Anyway, since after three weeks there was no improvement that was stopped.

Latest is Azilect.
I really would like him to drop all this and get back on the DXM, but I am afraid to question the 'specialists'.
Either way I have no idea what to do, how to help.

We should travel out to see if there is a Neurologist/Movement Specialist who we can depend on a bit more - who is perhaps more familiar with DXM, but there again we have no idea where to go and who to see.

This is all so very frustrating.
__________________
My blog:

I started to write so I could keep a track on my thoughts. This particular Lupus flare has turned my life on its head. Although I am pretty content with this enforced solitude, I have a constant dialogue going on within myself. So I thought I'd write it all down.


.


I hope you enjoy reading it when you can.
Isis is offline   Reply With QuoteReply With Quote