Thread: Syringomyelia
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Old 02-14-2010, 12:01 AM
Sheri_TOS Sheri_TOS is offline
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Join Date: May 2008
Posts: 236
15 yr Member
Sheri_TOS Sheri_TOS is offline
Member
 
Join Date: May 2008
Posts: 236
15 yr Member
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Quote:
Originally Posted by vicky429 View Post
I have a syrinx in spinal cord and was having symptoms long before they found it.i have tingling numbness in right arm and leg,and a feeling of cold water running through spine and into leg.the left arm was hurting so bad the other night i was bawling like a baby and could not even pick up or feed my six month old.i am now using a cane to help me walk.i went to er for the severe pain in left arm and they treated me as if i was crazy.they said the cyst could not be causing my symptoms and it is not impinging any thing.furthermore they said they spoke to my neurosurgeons partner whom i have never even seen yet until feb 23 and he said they said they will not even operate on me.was just wondering where to go from here?? Do i keep my appt with neuro or what?? What else could be causing symptoms??? If not the cyst what else could it be?? Also my cyst is from c/6 to t/2 and is 8mm wide.could it be ms????help i am losing my mind!!!!!!!!!!!!
You need to find someone knowledgable on SM. Check out:

http://www.asap.org/

http://www.chiariinstitute.com/

http://www.csfinfo.org

When the problem is very rare, not every doctor in the discipline has experience to treat that problem. SM and ACM is very rare and you need to see someone who has treated SM and ACM patients. Otherwise, they don't understand.
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