Hi Kim, I am so very sorry you went thru that ordeal. How RUDE! and good for you getting rid of him. John Hopkins has a good reputation of being a fine hospital. I hope you get a compassionate, kind, Dr.

Our disorder is so misunderstood. In fact, most people have never heard of it including Drs. RSDSA is a wonderful organization, concentrating on education of RSD to the Medical Field and the public. I went to their annual meeting last year.
Please don't ever worry about telling us 'how it is' when you come up against someone like that. We know exactly what kind of person they are.
I just called my RSD Dr. at noon today to tell him of a new symptom and he was so kind and gracious. Gave me some instructions, wants my last blood draw records, and then go from there. Then called me sweetie at the end. Been seeing him 6 years now. He is a brilliant man, neuro, psychi & pharmacologist.In 15 years with this, I'm better than I ever have been. Doesn't mean it's gone, I''m mobile, on fewer meds, just came up this month, some breathing problems-after I get that settled, am going to try the HBOT. I so hope it works.
When I started seeing him, I was full body,generalized. What has helped me, is his knowledge of neuro and meds. making tiny adjustments one med at a time, till I'm sleeping when I didn't used to. Pain meds have come down, because of good sleep. toes started curling-he told me what to do. 4 months later they were flat and walking again. A good RSD Doc. is critical.
Please us know how you are doing, Yes, please share your pain, we are here for you!!!!!!Your friend,loretta with soft hugs