My husband and I went to "the" appointment today... unfortunately, my labs from Athena were not back. Therefore, he will call when he receives them.
He thinks that inflammation may be the cause (specifically Sjogrens) of my SFN but he also reminded me that I may very well fit into the 30%, or so, category that is ideopathic. He assured me that he would continue to test me periodically if I fall into this category.

He prescribed Mestinon to see if it helps with the autonomic neuropathy and also referred me to his 'mentor', Dr. James W. Russell at University of Maryland. Apparently, he specializes in autonomic neuropathy.

He mentioned the option of IVig. Something to think about - I know it has been helpful for some, but I am going to see how the Mestinon works and wait for my labs to see if they reveal anything. Does any one here have any knowledge or experience on Mestinon?

I have been quiet lately, not feeling good... but have been peeking in to see how you all are. My best to you...

Mere