With neuro TOS, which I got from over working on my computer from 2000 to 2003, (I worked an additional year after getting TOS), the symptoms started in my hand, my thumb, headaches and loss of use of the hand by the end of the time. This pain included my shoulder, my neck and behind the shoulder blade I would get what felt like a "knife in my back" but what actually turns out to be a swollen area, sometimes an "egg" that needs to be smoothed out.

I am very sad to tell you that your symptoms are sounding very much like how my neuro TOS started.

I am putting out a new thread, so all of the new comers can see, which I compiled to try to understand HOW we get to neuro TOS, when there really isn't a "test" for it. Not a tried and true test like say a blood test. Just a lot of pieces when put together point to neuro TOS.

Finding a doctor who understands and recognizes TOS is like finding a needle in a haystack. That's why we did a list of docs whom we've gone to - my surgeon was Dr. Annest. From my surgery, I did not have headaches or RSD for over one year! That was wonderful, even though I am still primarily bedridden from the pain.

So check out my thread for you.

God bless you on this journey. We are here for you.