well, first e-mail me and then let's go from there?
I turned [eeeeekkkkk] 60 this summer while in rehab for a VERY BAD Osteo break.. The whole nine yards w/titanium and rods and pins and screws etc... Totally ickkky! It was NOT a FUN day by any means..
Osteo is something that Mrs D can be a whiz at, to degrees, but when I'd first had PN onset, I was put onpain pills [anti-seizure meds such as neurontin or lyrica] that literally suck calcium outta you. Ergo the first to show issues were my teeth to the comma behind the total dental bill sort. Next I was diagnosed w/ Breast Cancer and THOSE meds do an even worse # on the bones! So...I weaned myself off the 'pain' pills and gritted my teeth [which are still with me? Whew]
Thus before all this all above happened, I knew I was very borderline for osteo, and docs had been following me closely, [lucky to have not only good ones? but smart AND nice ones!] Soo the neuropathy was the 'only' issue then, but knowing I'd a family history of cancers and osteo's... My neuro suggested the IVIG, as I said..I concluded it's the most 'organic' of therapies...but! IT AIN'T CHEAP!!!
Here is a web site about costs.... half way down?
http://view.fffnews.com/?j=fe5915707...&WT.mc_id=&r=0
They are sponsors of IG LIVING magazine...
http://www.igliving.com/
It's free to sign up? Its informative and it does have real live people to answer questions about WHY SHOULD I USE IVIG? and the like...they've been great for helping me on one occasion, and I've referred others to them and they've been beyond super!
All in all, it AIN'T CHEAP stuff, it's precious stuffs and for 40-60% of us it works! For me it does and I've a heap of immune issues that it addresses and helps keep me walking and plain old functioning!



's in the interim... I'll try to plug you into good research? But I mite have to actually work at it, and w/infusions? To get updated stuffs. Plus 3 benedryl each of my next two days I'll definitely be a zombie of sorts. Never know tho?
Don't be scared about it? It's kind of interesting at first, and then? boring after that, esp. when taking heaps of benedryl!
In the meantime? Know that I view my infusions as being 'refueled' and I feel soo much better afterwords!
Hugs and hopes for you for the interim... - j