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Magnate
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Join Date: May 2007
Posts: 2,049
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Magnate
Join Date: May 2007
Posts: 2,049
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I have had very little bad effect from IVIG. They do a loading dose to start with, 4 infusions over 4 days. That is what seems popular here, in our area.
I have had 2 loading doses, since they started it a few years ago, then stopped for several years....tried IV steroids...(16 weeks....never, ever again...I swear it damaged me.)
I did puke one day during the second loading dose after they decided to resume IVIG when my ANA went way up, but they were running it in COLD and fast, a big no no....I tried to tell them but the home care agency nurse argued with me.
I get it in an infusion center now and they are very careful. It takes 2 and a half hours to get it done. Sometimes, some days, I feel a bit funky, but in general, I tolerate it pretty well.
I would give IVIG a try before any other stuff. It works with your body.
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