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Old 02-18-2010, 08:07 PM
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cyclelops cyclelops is offline
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Join Date: May 2007
Posts: 2,049
15 yr Member
cyclelops cyclelops is offline
Magnate
cyclelops's Avatar
 
Join Date: May 2007
Posts: 2,049
15 yr Member
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Your insurance should cover IVIG. The cost is hideously prohibitive to pay for out of your own funds. Check to see if your provider covers it. They may make you go to an infusion center. Initially I was told I was denied, but I was only denied for home insurance....later I was denied all the way around, but fought it and got it.

I don't take the Benadryl due to my restless leg. I just premedicate with tylenol....period. One can have a reaction, because one never knows what is in each bag, since it is pooled antibodies....from thousands of people. (Don't think about that....I try not to.)

I am still having some disease advancement, but without IVIG, it would be much, much worse. Some people are lucky enough to have a total remission.
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