Thread: Desperate
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Old 02-19-2010, 11:02 AM
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nide44 nide44 is offline
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Location: Chesapeake Bay, Land O' Pleasant Livin'
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nide44 nide44 is offline
Senior Member
nide44's Avatar
 
Join Date: Aug 2006
Location: Chesapeake Bay, Land O' Pleasant Livin'
Posts: 1,660
15 yr Member
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I forgot to add, there are centers that specialize in neuropathy.

The Jack Miller Center, Johns Hopkins, Cornell-Weill,
some Mayo clinics (not all)..... to name a few.

A large hospital that is a teaching hospital,
affiliated with a university's medical dept,
and does research in neuropathy - is a good bet, as well.

There is a site, created by medical people and PN sufferers,
that lists all the tests known - regarding PN.
If you go to :
www.lizajane.org
you will find the tests, as well as many other aides
for those of us with PN, who want a comprehensive follow-thru, and
charts to download.... to keep up with results over time, & see the whole picture.

Read the 'stickies' at the top of the topics page (there are a few- so take your time) and learn as much as possible. You will have to be your own advocate- so learn as much as you can.
Being properly informed & educated is the only way to combat this problem.
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Bob B
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