I feel for you and your loved one! You could check out the RSD/CRPS Treatment Center and Research Institute in Tampa Florida.
http://www.rsdhealthcare.org/

"Additionally, there are children who suffer from RSD / CRPS and receive treatments that are only available through the Institute.
The Institute, under the direction of Anthony Kirkpatrick MD, PhD, devotes significant efforts to educating physicians worldwide on RSD / CRPS".

I hope her flare ends soon.

jim