Quote:
Originally Posted by daniella
Hi. I am sorry your daughter is struggling. I also know how this takes a toll on the whole family. Anyhow Ihave traveled a lot for this condition and care. I am 31 but anyhow my best pain doc was one I found by calling a major hospital in my area and explained my situation to the pain clinic. They suggested a specific doctor and then later I had found someone else who had rsd who had seen him. Truly he was better then some of the weller known rsd docs. So I encourage you to call the major hospitals in your areas pain clinic and your situation. Often if they can't help you they can direct you to someone who can.
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Hi Mom, I'm so sorry the situation you and your daughter are in. The Cleveland Clinic has a children's hospital. Some with RSD have gone there. If you can find a local Dr. for your daughter that is knowledable about RSD and willing to coordinate treatment with out of state specialist. rsdhope.org is another site that may give you some direction.
Please let us know how you both are doing. your friend and another mother, loretta with soft hugs. I am the one with RSD when my daughter was 15 She is now 30.
