Hi everyone..I just have to write before I cry and say...I just got word that my ins. carrier just called..not approving my Drexel appt... under the conditions that it is experimental.. Maybe this is my B but..isn't it only considered experimental in other countries..not ours?? The long coma... but short infusions and outpatient here covered..did some here get it approved before?? This may be my misunderstanding and if it is..I apologize...Not that I felt confident but my insurance is wonderful with life time benefits and no max...I thought I had a chance.. I will speak with my Dr. to inform them of the decision on Monday and the ins. woman encouraged me to put in an appeal..asap..as my appt. is in only 3 weeks away.... OMG..my pain is killin me...

it's okay.. really I am fine...I won't let this get me down..I still have a great life..

Luv, Kathy