I have read that both the Children's Hospital of Philadelphia ("CHOP") and the Boston Children's Hospital - which is located in Waltham, Ma - both have excellent pediatric PT programs geared towards kids your daughters age. See the RSDSA website (RSDSA.org) and search under the "Kids" or "Teenagers" link. There was a good article about the success of the Waltham, Ma PT program within the last 6-8 months in the RSDSA Review magazine.

If you can't find it write me back and I'll find it for you. I truly wish you the best of luck. I have often said that I am profoundly happy that it is me that is sick, not my husband or my kids, I don't think I would be able to stand it if it were them.....please don't forget to take care of yourself, too...XOXOX Sandy