Member
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Join Date: Jun 2009
Location: Texas
Posts: 748
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Member
Join Date: Jun 2009
Location: Texas
Posts: 748
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Stellatum,
First off - hi and welcome!
From my first clinical exam, my neuro said MG before any testing. And I don't have obvious ptosis either! They gave me Mestinon - waited about 20 minutes - redid the complete clinical exam. Confident it was MG, tests were scheduled: antibody, SFEMG, respiration and a CT scan for thymus. I am sero neg and had a borderline SFEMG. Passed the others too.
After the tests came back - my neuro wasn't thrilled - but said a small per centage of MG patients have neg tests....but they still have MG.
I've been on Mestinon now for 8 months and have had to step up the dosage once already and probably again at my next appointment.
Hang in there! I was very lucky to have found the 'right' neuro on my second try!! Sometimes it's a long haul to get a dx when the tests don't cooperate - but keep at it.
Good luck - and keep us posted.
Sue
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