Well, things haven't change much. She is stiff in a bad bad flare up. It was her doc from Dallas children's medical center pain management clinic who called this local doc and they denied her anyway! Her Dallas doc doesn't know anyone else here in OK so it will be a stab in the dark for any of us if we can find anyone who sees children. I have been called hospitals and clinic telling them our story and I get the same thing "we don't treat children". I finally called OU medical center children's hospital. The do not have a pain management clinic on their site but it turns out they are in the process of starting one. They said they would see her pending her paperwork from her previous doctor. That is awesome! I hope it sticks!! So, we'll see. The problem is she is in so much pain and they can't see her until mid march! We may have to take her back down to Dallas anyway just to get her some immediate help. Poor baby!