Hi. I am sorry she is still in so much pain. I did not think that you could travel. If so I know a teen who went to Rush in Chicago and also Cleveland Clinic. I have also went to Cleveland Clinic and did not have the best results but this teen seems to be doing better. Another thought there is I think on RSDSA site or one of them support groups in all the states. Anyhow I would look under OK and even if it is not in your area maybe call the leader and see if she has any referals of good docs. I did that in MI. I really think referals from patients who are in similar can be a good source