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Old 02-22-2010, 08:24 AM
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lostmary lostmary is offline
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Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
lostmary lostmary is offline
Member
lostmary's Avatar
 
Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
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I also have the same problem. The jerks and all could almost lift me off the bed at night. I've got the pain pump now and am on Daluidad. I told the drs about the jerks at last visit and they put me on Backlofin. My jerks have really gone down. I think they plan to up the dose when I go back in a couple of week, and I'm hoping that with the slight increase they will go away completely. They are down to a few jerks per hr. and they aren't anywhere near as severe as they were before the backlofin. (spelling is pretty bad lol). It seems to be the drug of choice for most ppl who have the jerks. We can get it in the pump instead of oral. I'm taking oral right now to make sure it works before we place it in the pump. SO far so good.

Mary

Sorry, I have had only one cup of coffee and my mind isn't awake yet.
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