New Member
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Join Date: Feb 2010
Posts: 1
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New Member
Join Date: Feb 2010
Posts: 1
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Rsd
My sympathy and prayers are with you and your daughter in dealing with this monster. I, too, have a 13-year old son with RSD. I live in NY and recently had him treated at Children's Hospital, Boston for 3 weeks. They work wonders with children. I understand that you don't want to travel, but it might be worth it to give it a try. They do all the leg work for you in getting it approved through your insurance company. The biggest downfall is there's a waiting list. Fortunate for me, my son was diagnosed within 2 weeks and treated within 6 months. He is now pain free. He just went back for his one-month follow-up and he's doing great. He hasn't missed a day of school since he returned home due to the RSD. This is a small part of the rest of yours and your daughter's life. It's worth the sacrifice. There is also an article about it in the RSD Newsletter. It's part of the Mayo Clinic. Good luck and I wish you well.
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