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Member
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Join Date: Sep 2009
Posts: 884
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Member
Join Date: Sep 2009
Posts: 884
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in the early days of my illness it was very hard for me to realize the connection between activity and worsening of my symptoms.
I now know that there is a clear connection, but like you say, many times it would be with a significant lag period. and with the fluctations of this illness, it was very confusing.
even though I consider myself a fairly inteligent person, it took me a long time to understand that if I over-excert myself, I will pay for it later, even if not right away.
I remember that at some point I asked my neuro about the level of activity that would be OK for me, and he said- I am sure you can know yourself. but, honestly I didn't. not then.
knowing this illness very well now, I am not surprised at all, that if you did something you haven't done for a year, you could easily push yourself over the edge. probably the short bike ride was not as short as you thought. you may have been comparing it to what you were able to do before, and not to what you can actually do now.
it's good that you are gradually recovering from this. and just try to increase your activity level much more slowly.
I know that for me the most "dangerous" times are when I am doing better. it is so tempting to do a bit more, when you feel that you probably can, and then crash the next day.
I now rarely do that, but still there are times that I just can't resist the temptation. and sometimes, if there is something that I feel is worth the price, I will just do it, knowing what to expect later.
still the fact that you were able to ride your bike after not being able to for a year, is probably a good sign that you are doing better. don't let this set you back, just try to go a bit slower.
maybe discuss it with your neurologist and see if there is any rehab facility that you can go to, and increase your activity level in a more controlled way.
it is very hard to initially do it on your own.
alice.
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