I don't have CNS involvement, at least not so far....it has been a while since my last MRI. I 'feel' brain dead so many days. It is such a hard decision. I am a quintessential worry wart, so I am not sure that it is the right choice for me....plus if something bad can happen for me...it does. Not that IVIG Is without risk....it isn't. I think something that can be given in baby doses and backed off of, for me it the right choice. I think I need something added to the IVIG.

I am glad that the Rituxan worked for your CNS issues. It is good to hear something works. Sounds like for PN, it is less effective??

There seems to be a real push for Rituxan lately and on the Sjogren's board, I am not hearing of much success, but that is a whole 'nuther' issue. A few are on Cellcept, but that too packs a punch...I wonder if that can be titered way down? Oh well, much to think about....I have some skin changes lately, that are really a bit alarming.

Well, I dont want to highjack the thread. It would be good to hear if Rituxan works for PN, if any one has that experience.

Thanks for sharing your experience.