Thread: Another ??
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Old 02-25-2010, 12:40 AM
love2laugh love2laugh is offline
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Join Date: Jul 2007
Location: California
Posts: 116
15 yr Member
love2laugh love2laugh is offline
Member
 
Join Date: Jul 2007
Location: California
Posts: 116
15 yr Member
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I have both types (in different parts of my body--- which have gone full body) and I would not choose to classify one as easier or more difficult to deal with than the other, there are some unique differences in both treatment options and symptoms.....

Now, to better explain--- I developed type 2 in my pelvis/abdomen due to complications from pelvic/abdominal surgery. The "positive" it was diagnosed relatively quickly and there are some experimental treatments (that can't be done with type 1) that seem to help. The "negative" it caused my autonomic nervous system to completely go haywire, resulting in internal spreading.... Also, due to the location it tends to effect everything and some conventional treatments don't work (ei blocks). Symptom wise, due to nerve entrapement I have intense itching at the initial site and my body thinks everything is foreign (especially adhesives...)

I developed type 1 in my legs/feet, many years ago due to multiple broken bones. The "positive", often times type 1 can be contained to the original site of injury, and there seem to be a lot more treatment options to help limit spread.... The negative--- in my case, my legs took much longer to be diagnosed, and by that time my immune system and sense of tempature regulation were already effected.

In my particular case, the type 2 has been the most bothersome because it kicked off a chain reaction and effects everything. Its a "spikey-er" type pain, very spastic, and the only thing that helps the spasticity is an experimental treatment that I am constantly fighting my insurance to pay for.

For both types, and since it's gone internal/full body, I use a combination of treatments--- physical therapy, injections, various meds, relaxation techniques, etc. My doctors and I also have to figure out ways to manage the other issues CRPS has caused (ei cardiac problems, weakened immune system, etc)..... The upside, being full body, I don't have the worry that its going to progress--so the fear of having sugery, injections, etc is minimized.

Ultimately though, we only understand the types we deal with and how it effects us personally--- we are all different.

L2L
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