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Old 02-25-2010, 08:39 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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#36 down. No problems, no concerns as usual.

Had the meeting with my neuro after the infusion. He went to the Key Opinion Leaders Conference last month in FL. He had a lot to say, even had notes. We talked for over an hour. He is no longer pushing drug holiday. His opinion is that there is no protocol, no studies to back up a holiday although there is talk of setting up some sort of scientific study, and that the assay will be out within months and that once you are identified as a non-carrier of JC virus, you'll stilll have to be tested every 6 months since we don't know when we are exposed, who becomes a carrier once they are exposed, etc, etc, etc. Regardless, it was a relief for me since I didn't want a holiday.

So I wait for the test/assay to come out, get on the trial if one is required to test the assay and we shall see where it goes from there!
Life is good!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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