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Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
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Member
Join Date: Jul 2008
Location: A Beautiful Town in Maryland
Posts: 425
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Quote:
Originally Posted by Feel the Burn
I;m on IVIG loaded over 5 days in December and two days a month since then,, for me it hasent done a thing, my neuropathy just keeps getting worse,, I went to Gasto on Monday,, he said I have IBS even after telling him I have sensory neuropathy,, he assured me it was IBS,, and said drink a bottle of citrate and use more fiber,, went home drank the citrate and all that came out was this horrendous black stuff,,, I called him black,, now hes alarmed,, says I may have bleed somewhere,, and this was after telling him,, look sometimes when I go its tarry and black,, now I cant go at all,, thanks to the idiots I have for doctors,, seems like there just marching me down the road to eternity
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I am very, very sorry to hear that IVig is not helping and that you are so ill... It certainly is frustrating to go through the testing and dealing with doctors... I hope you get some answers soon. It definitely sounds like you need some answers.
Mere
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