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Old 02-27-2010, 04:29 AM
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Sukadog,
I've had RSD since '83.
Full body since about '89-90.

I'm reading all this "Anti-Ice" stuff, and, it still confuses me.
I get migraines, (I have TOS also), so these dark blue "Hydroculator" packs, that are kept in the freezer, are a Godsend for me...
I also use heat.

In my 27 years of RSD, I've found that and it seems to me for myself, I must "force" my body into a different temperature range. To Change the Pain!

Like this....
First thing in the AM, I'd get up, make a cup of hot tea, and get in a very warm whirlpool. (I'm a plumber, so had one built in, but, you can buy very effective ones, that hang over the tub for less than a hunert buckos.) $100.

Then, I'd have these freezer packs, in different sizes, I NEEDED one for my head, and neck!
I had electric Hydroculators, for Heat, for my neck, and full back.
Professional stuff.

But, why this outbreak about NO ICE, NO COLD, I can't fully understand.
Still seems to me, that, the Sympathetic system needs to be "Forced" (or Fooled), into a decision!
I hope you can understand my wording.....

But, for instance, the heat in the AM, got me up and moving.. Relaxing my muskles, and letting me move. (I am worst in the AM).
Then, when Intense pain struck, the cool, or cold did wonders.
Just a diversion!
If, we were able to have a home thermograph, it would show us where we're too hot, or cold. The idea is, to Change it!
Force the Sympathetics, to "Think".! Just a bit!

I'm NOT suggesting freezing cold, but, I always used a towel between any big temperature change.... I suggest that for all!

So, I suggest you don't feel guilty about cooling yourself. For as long as I've had this, I've been doing it. I use heat and cool. And, I think it's good therapy!

Be Well!

Pete
asb
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