Hello and welcome to NT.

Reading your post brought tears to my eyes. As a Mom, I can't imagine anything worse than an injured baby.

I am impressed that, despite all your stress, you've had the presence of mind to research your daughter's condition. She's lucky to have such a great parent.

In addition to searching the CSF leak forum, I would suggest that you also might want to look at information on Traumatic Brain Injury (TBI). Head injury in children is often dismissed as something that will "take care of itself." That's why it's important to be an informed advocate for your baby. Some excellent sources for further reading include: the Brain Injury Association of America (BIAA)www.biausa.org; www.tbiguide.com and our own TBI forum here on NT http://neurotalk.psychcentral.com/forum92.html

I would suggest that you repost your message on the CSF Leak and TBI forums where it is more likely to be seen by members who can address your specific questions.

Hang in There