Quote:
Originally Posted by mrsD
Welcome to NeuroTalk.
I have to really wonder when I see such a long list of problems and history of suffering, not being alleviated in some way.
I am going to recommend based on your osteoporosis comment, (which in younger patients is called osteopenia), that you may be very deficient in Vit D. Many people with chronic issues turn up on these boards and when tested have very low D levels.
Here is a new medical video on this:
We even had a poster on PN here who had nerve problems in his upper back/shoulders that went away when he corrected is Vit D levels!
Also I'd get B12 measured. If you are below 400-500 reading you need supplements ASAP. Many doctors don't test for this and if they do they may say your are "normal", based on poor antequated lab ranges. The newer information on this is that you must be at 400-500 minimum to be considered "normal".
I have a B12 thread here:
Fixing these two things may offer you some improvement, if they are indeed low.
Please visit our PN board, as there are members there with
complex inflammatory issues like yours.
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THANK YOU!
This morning after sleeping pretty well last night I feel a little relief but I know it's going to get worse as the day goes on. I will definitely be calling the neuro on Monday and see if there's something I can do. I'm not in pain so I don't want to start the Cymbalta she prescribed. I don't want to take anything that needs tapering to get off and that has the side-effects most people report.
Well, I'm 52 in age and 25 in my brain.
I asked during the blood test and they said they were testing the B12.
I thought D was one of those vitamins that can be toxic in large amounts.
Also, another symptom from the Jan flare came up last night - when I let out my breath (like when you relax), the bottom of my lungs feels 'weird' (can't really explain the sensation-maybe tingling/burning/scratchy/irritating?) and I start dry coughing.
My various arthritis/costochondritis and related have been helped different meds. I guess I should have posted my med list:
Once a week:
• Enbrel injection (I administer for arthritis, costochondritis and related)
• Methotrexate 2.5 mg – eight tabs once a week (arthritis, costochondritis and related)
• Actonel 35mg once-a-week if I remember (osteoporosis)
Daily:
• Synthroid .175mcg – once a day (I have no thyroid)
• Lisinopril/HCTZ Tabs - one half tab daily (slightly high blood pressure)
• Hydroxychloroquine 200 mg –two daily (arthritis and related)
• Calcium with D 600 mg – two tabs once a day when I remember (osteoporosis)