The scary cough with the strange feeling deep in my lungs only started up when I got my first neuropathy flare (are they called flares?) and I didn't notice it until I tried to sleep. I ended up having to prop myself up on pillows to ease the sensation slightly. It's worse when I lie down or when I sit up/stand and actively push the air out of my lungs - that's when it shoots the tingles into my legs.

I was taking folic acid but I stopped about a year ago (my bad-I had forgotten it was to be taken to counteract the methotrexate) along with all my other supplements (fish oil, etc.) and many other OTC drugs because I was feeling 'weird', for a lack of any other term. I wanted to clear my system of everything to see if I felt better. I did feel better so I didn't go back to all the supplements.

Yesterday I started back on my vitamins:

• OTC B complex until the B50 arrives (b1-10mg, b2-10mg, niacin-10mg, b6-10mg, folic-100mcg, b12-10mcg, biotin-10mcg, pantothenic acid-10mg), calcium with D (1200mg cal/800IU D)
• folic acid (1mg + 28mg calcium/21mg phosphorus).
• multivitamin (A-3500IU, C-60mg, D-400IU, E-30IU, K-25mcg, B1-1.5mg, B2-1.7mg, niacin-20mg, B6-2mg, folic acid-400mcg, B12-6mcg, biotin-30mcg, pantothenic acid-10mg, calcium-162mg, iron-18mg, phosphorus-109mg, iodine-150mcg, magnesium-100mg, zinc-15mg, selenium 20mcg, copper-2mg, manganese-2mg, chromium-120mcg, molybdenum-75mcg, chloride-72mg, potassium-80mg, boron-150mcg, nickel-5mcg, silicon-2mg, vanadium-10mcg, marigold extract-5mg standardized to 250mcg lutein, lycopene 300mcg)
  

This morning I restarted my fish oil (1200mg) and vision protection (A-9650IU, C-195mg, E-95IU, zinc-34.8mg, copper-0.8mg, lutein blend-25mg)


I'm trying to be proactive while feeling so scared.

After a good-night's sleep the sensation from my upper thigh to knee is a little better, but I know it will get worse as the day progresses. My lower back is aching, too, which may be a good sign I'm getting a little feeling back in that area.



The cough I have now (which I didn't have yesterday) is from that funky feeling in the bottom of my lungs... This has come BACK after being on antibiotics for two weeks for a sinus infection. Yesterday was my first day off and I felt the beginnings of it. Now it's back full-force and breathing while relaxing into sleep brings it on. I can minimize the feeling by propping myself up to sleep but I'm supposed to keep my back flat due to my AS.