Quote:
Originally Posted by daniella
Hi I did not have an injury either but have RSD and PN. It is very important though to rule out other conditions. I have had multiple mri,emgs,xrays I mean I could go on. Can you see a pain specialist/anestesolgist? What state do you live in? Maybe someone could suggest a pain doc who deals with RSD. If not I would call a major hospital or teaching hospital in your area there pain clinic and explain you have rsd and want to see if they have a pain specialist who deals with that. Have you had any blocks? Are you on any meds?
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Thanks daniella,
Yes, all that other stuff has been ruled out (post to bobber). I live in Arizona and loretta from Arizona has been kind enough to suggest some things. I just started at a pain clinic last week and they are familiar with RSD. Began epidurals for neck and lumbar last week. No blocks yet.
The only meds I've been on are Lyrica (didn't help and stopped it) and Trileptal (helped with back pain but made me so stoned I couldn't function - stopped it, thought it caused the burning too but I'm still flaming). Psych people have tried three anti-depressants on me (pristiq, elavil, trazadone) and the only thing they did was make me burn more. I'm popping xanax a lot lately to help with back pain. Last time I saw neuro he said he wanted to try me on gabapetin (sp?) so I'll see what he has to say tomorrow.
I've learned that I'm not a very patient patient and want things fixed. And because sometimes it takes months to see specialists I like to have options lined up for the future.
Thanks again for your help.