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Old 03-01-2010, 08:25 AM
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default b onna, I'm suspicious--

--that this most recent situation that's ongoing, stemming from that back "pop", is not a peripheral neuropathy, but a spinal cord problem, possibly also affecting the proximal spinal nerve roots (which would give it a bit of a peripheral dimension--each nerve root ennervates a specific area of the body, and often one can tell which roots may be involved by examining the locatin of symptoms--but spinal cord impact can affect any body area at the level of lesion or below, and the symptoms can be exactly the same as those of a more peripheral problem, which is why it's often difficult to tease out exactly what's wrong and where).

With all the conditions you've listed, and all the meds you're on, I wonder to what extent you may have some symptoms that are med-caused. It seems as if you've been prescribed things not only for conditions, but also for side effects for other meds. You're likely one very big chemistry experiment; and it's difficult to know what's causing what with all those possible interactive combinations.

I'm not a doctor, but I'm suspicious of a lot of those diagnostic labels that you've been given. It's not that people can't have multiple conditions--they certainly can--but I sense there hasn't been a lot of coordination of testing and investigation among your various doctors. I wonder if you'd be better off fidning a good doc, no matter the specialty (orthopedic, neurologic, endocrinologic, rheumatoloigc . . .) who is interested in investigation (I know, easier said than done) and sort of start a "from scratch" examination to try to get to the bottom of this. Personally, given your ankylosing spondylitis, and other symptoms you've described, I suspect really good MRI's would reveal more global spine problems with nerve root and/or cord compression, and much of it might stem from more global autoimmune issues. Can't say for certain, but I'm getting the impression that the autoimmune tests you've been given may have only scratched the surface (have they tested you for anit-neuronal antibodies? Celiac/gluten sensitivity? Anti-purkinje antibodies?).

I'd like to recommend the Liza Jane spreadhseets:

www.lizajane.org

--which were put together to be as comprehensive a guide to test for neurolgoical symptoms as we could research and think of; also very useful to track test results over time and suggest tests that many doctors may not think of.
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