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Junior Member
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Join Date: Jan 2010
Location: Ozark Mountains of Arkansas
Posts: 9
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Junior Member
Join Date: Jan 2010
Location: Ozark Mountains of Arkansas
Posts: 9
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Quote:
Originally Posted by bobber
cindy
where all is your RSd at ,,and how long have you had it and are you able to walk without crutches?/ Im glad the cymbaltra worked,,,what else are you taking,other than the neurotin , and does it really help??? bobber
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Hello Bobber;
Well I 1st Developed RSDS in my R ankle, which they feel I had developed due to preexisting problem and that then Husband had just started a Job but not insurance. It was found to be in my 2-3 Stage and was realized, after my Ortho Surgeon taking of X-ray found a Bad Problem with the Condition of my Bone that was from my Foot Going up my leg. This happened they feel as a Results of the Delay in having my Leg Problem worked on and having surgery. This was in the Leg were I had to have my Ankle Fused. After 1 ½ years of Unrelenting Pain and the Inability to Put any weight on my R leg, but after my Doctor taking updated X-rays. He Noted that my Bone was as he put it turning into Mush Spots had developed and the Fusion was not taking. He was not aware of RSDS, as were not many Doctors in the Late 80’s. It just so happened that the Doctor he sent me to, happen to be a Teacher who was Aware of RSDS.
Contacted my Doctor and explained I was at a Tipping Point, and after trying some Nerve Blocks on my Foot OMG! I thought I was GOING TO JUMP OUT of my SKIN! The Pain was so OUTRAGOUS! Because of such I was referred to A Newly Formed Department within Our Hospital the Doctor was Very well Versed on Treating RSDS. And explained Just what damage was done and How he planned on getting me on the Way to help get me Healed.
I had to Go thru 6 Months 3 times weekly for Sympathetic Nerve Blocks, I thought GREAT! They think I’m feeling sorry for myself! As with Sympathetic Nervous System it was explained that I had no control over what It does but that it was my Body reaction. Here I thought they felt I was feeling Sorry for myself!
As to your question, I was on Crutches for 6 years. Also I was Just Starting to Get better as I was Told, and because of the Damage done to my Bone I slipped and Fell, I Broke my Leg, from the Tips of my Toes all up to my Knee Joint, including 3 weeks in the Hospital 3 surgeries, Blood Clot, then within one Month of being Home, it was realized I also Tore Ligaments within my Knee Joint. I was Concerned in my Bones Heeling But Since the Nerve Blocks where so Successful, I was Luck, as when my Ortho guy came to the Hospital I remember asking if my Broken Bones would Heal, at which he didn’t know. I was Lucky as it had. I have since broken my Foot many times and its healed. Also broke My Tib bone again and at which time it had healed.
As to your Question on my Medication I had been put on to help with my Leg. Back then and Still it had been Neurontin, and the Medication that made a Big Difference from being able to walk was Voltaren aka ~ Diclofenac which is a Anti Inflammatory Arthritis Drug ~** ~ its considered ~ Diclofenac is in a class of medications called NSAIDs. It works by stopping the body's production of a substance that causes pain, fever, and inflammation. At that time it was a Big difference it made with helping me being able to walk. I also was told to always told to inform Doctors of this Condition. Since this is a Situation I’m predisposed to.
Also I had this happen after having the Surgery to Put my Thumb Joint Back together. And it set in even thou they took some precaution to Avoid this from happening it still happened. I have had doctors who have told me they don’t believe that there is this Disorder, and that its just a Excuse for some they tend to have More Pain. Needless to say, I never seen that Doctor again!
Also After having been put On Cymbalta, I call the Miracle Drug I noticed that before when I would stub my Foot that was affected by my RSDS, before being on my Med of Cymbalta I would feel OMG for the 1st ½ the Pain OMG! It would feel like I broke my Foot! Well 1st thing I had noticed Different was the Medication and How it helped in regards to how I felt Pain With my RSDS.
In Short what Helped with my RSDS:
Sympathetic Nerve Blocks. To Area Affected.
Preformed by Knowledge Pain Clinic.
Including the Realization I needed to push Past the Pain.
Medications that helped:
Neurontin
Voltaren aka ~ Diclofenac
Cymbalta
I was very Lucky as not many knew about RSDS
I do still have pain in the affected Foot Ankle, But as I like to Say Hiccups in Life as I also Say {Stuff Happens!} A Nice way of Putting it!
HTH:  Cindy C.
My Favorite QUOTE:
 Live each Day as thou its Last and Always take time to Stop and Smell the Rose's!
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Live each day as though its your last and always take time to stop and smell the ROSES!"
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